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Eduovisual

Ethics, Communication & Professionalism

Do-not-resuscitate and POLST/MOLST orders

Clinical Overview and When to Suspect Code Status Conversations Are Needed

DNR/DNAR (Do Not Resuscitate/Attempt Resuscitation): a physician order in the medical record that withholds CPR and ACLS in the event of cardiopulmonary arrest. Does NOT limit any other treatment (antibiotics, ICU, dialysis, pressors, intubation for non-arrest indications) unless separately specified.

DNI (Do Not Intubate): separate order; a patient can be DNR-but-OK-to-intubate, or full code but DNI (uncommon, must be clarified).

POLST/MOLST (Physician/Medical Orders for Life-Sustaining Treatment): a portable, signed medical order that travels with the patient across care settings (home, SNF, ED, hospital). Addresses CPR, level of medical intervention (full/selective/comfort), artificial nutrition, and sometimes antibiotics.

Advance directive / living will: a legal document expressing patient preferences; it is not an active medical order and does not bind EMS.

— Any serious or life-limiting illness: metastatic cancer, NYHA III–IV heart failure, GOLD D COPD, ESRD, advanced dementia, ALS, cirrhosis MELD ≥15.

— Admission to ICU, before high-risk surgery, at SNF/LTC admission, on hospice referral, after a sentinel decline (fall with fracture, recurrent aspiration, weight loss).

— Age alone is not an indication; functional trajectory and prognosis are.

— The primary/attending physician with the longitudinal relationship is preferred; do not defer entirely to consultants or trainees for goals-of-care framing.

Definitions
When to initiate the conversation (Step 3 triggers)
Who should lead it
Key distinction: A living will is a wish; a POLST is an order. EMS in the field can honor a POLST/out-of-hospital DNR but generally cannot act on a living will alone — they will resuscitate unless a valid medical order is present.
Board pearl: "Surprise question" — Would you be surprised if this patient died in the next 12 months? A "no" answer should prompt a goals-of-care/POLST conversation, regardless of current acuity.
Solid White Background
Presentation Patterns and Key History

— Elderly patient with advanced dementia, recurrent aspiration pneumonia, admitted from SNF — family asks "what should we do?"

— Patient with metastatic pancreatic cancer presenting to ED with hypotension; chart shows outpatient POLST marked Comfort Measures Only.

— Post-op patient with prior DNR who is now arresting from a reversible intraoperative cause.

— Adult child requesting "do everything" while patient (capacitated) wants comfort-focused care.

Patient's values and goals, not procedures first. Ask: "What gives your life meaning? What would be an unacceptable outcome?" before "Do you want chest compressions?"

Understanding of current illness and prognosis — correct misconceptions (e.g., CPR success on TV ~70%; real in-hospital survival to discharge ~17%, far lower in metastatic cancer/multiorgan failure: 0–5%).

— Prior advance directive, healthcare proxy/durable power of attorney for healthcare (DPOA-HC), existing POLST.

— Religious, cultural, and family decision-making norms.

Decision-making capacity at this moment for this decision.

Reframe (status has changed), Expect emotion, Map values, Align, Plan.

— Make a recommendation based on values — do not present resuscitation as a neutral menu ("Given what you've told me, I'd recommend we focus on comfort and not attempt CPR").

Typical Step 3 vignette setups
Essential history to elicit
Communication framework — REMAP / Ask-Tell-Ask
Step 3 management: When family says "Do everything," do not simply comply or refuse. Explore meaning: "Tell me what everything means to you." Often reveals fear of abandonment, not literal demand for CPR in a dying patient.
Board pearl: The single best predictor of a values-concordant end-of-life course is an early, documented goals-of-care conversation — not the existence of a paper advance directive alone.
Solid White Background
Assessing Capacity and Surrogate Hierarchy

Communicate a choice

Understand the relevant information

Appreciate how it applies to oneself

Reason through options consistent with stable values

— Capacity is decision-specific and time-specific: a patient may have capacity to refuse CPR but not to manage finances.

— A psychiatric diagnosis, intoxication, or dementia label does NOT automatically remove capacity.

— Higher-stakes/irreversible decisions warrant a more rigorous capacity assessment ("sliding scale").

Competence is a legal determination made by a court.

Capacity is a clinical determination made at the bedside by any physician.

— 1) Court-appointed guardian (if exists)

— 2) Durable power of attorney for healthcare (DPOA-HC / healthcare proxy) — patient-designated; trumps family

— 3) Spouse (or domestic partner where recognized)

— 4) Adult children (majority rule typical)

— 5) Parents

— 6) Adult siblings

— 7) Other relatives / close friend familiar with values

— Exact order varies by state statute — Step 3 tests the principle, not state-specific minutiae.

Expressed wishes > substituted judgment (what would the patient want?) > best interest (only if values truly unknown).

Decision-making capacity — 4 components (assessed by the treating physician, not a psychiatrist by default)
Key features
Competence vs capacity
Surrogate decision-maker hierarchy (when patient lacks capacity, no advance directive)
Standards surrogates must use (in order)
Key distinction: A surrogate's job is to voice the patient's preferences, not their own. Redirect a conflicted family with: "What would your mother say if she could sit up and tell us?"
Board pearl: A capacitated adult can refuse any treatment, including life-sustaining therapy, even against family wishes — autonomy prevails. A surrogate, however, generally cannot demand non-beneficial treatment the medical team deems inappropriate.
Solid White Background
POLST/MOLST — Structure, Sections, and Validity

Section A — CPR: Attempt resuscitation vs Do Not Attempt Resuscitation. Only applies when patient has no pulse and is not breathing.

Section B — Medical Interventions: Full Treatment (all including intubation, ICU) / Selective Treatment (IV fluids, antibiotics, non-invasive ventilation; no intubation/ICU) / Comfort-Focused Treatment (symptom relief only; transfer only if comfort cannot be achieved in current setting).

Section C — Artificially Administered Nutrition: long-term, trial period, or none.

Signatures: patient (or surrogate) AND physician/APRN/PA — both required for validity in most states.

— Patients with serious illness or frailty for whom death within ~1 year would not be surprising.

Not appropriate for healthy adults — they should use an advance directive instead.

— Brightly colored (often pink/green/lime) form; travels with the patient.

— Honored by EMS, ED, hospital, SNF, and home health.

— Supersedes prior conflicting advance directives for the issues it addresses.

— Review at every transition of care, major clinical change, or change in goals.

— A capacitated patient can void their POLST verbally at any time — document and reissue.

— "DNR" + "Full Treatment" = valid: aggressive care up to but not including CPR at arrest.

— "Attempt CPR" + "Comfort Only" = incoherent; must clarify with patient/surrogate before honoring either.

POLST form components (varies slightly by state; MOLST is the NY/MD nomenclature)
Who is POLST for?
Portability and authority
Reviewing/voiding a POLST
Common internal contradictions (test favorites)
CCS pearl: On admission of a patient from a SNF, order: Review POLST/MOLST and reconcile code status within the first hour — equivalent to medication reconciliation. Document the active code status order explicitly in admission orders.
Board pearl: A POLST without both signatures is not a valid medical order — default to full code until clarified.
Solid White Background
Differentiating DNR, DNI, AND, Comfort Care, and Hospice

— Withholds CPR/ACLS at the moment of cardiopulmonary arrest only.

— Does not affect: antibiotics, IV fluids, surgery, ICU admission, dialysis, transfusions, vasopressors for pre-arrest hypotension, or intubation for respiratory failure.

— Separate order; permits BiPAP/HFNC/medical management of respiratory failure but no endotracheal intubation.

— Patient can be DNR + OK to intubate (e.g., reversible COPD exacerbation, wants ventilator support but no CPR).

— Increasingly used language; clinically synonymous with DNR but framed positively. Some institutions prefer it because "DNR" sounds like withdrawal of care.

— All interventions aimed at symptom relief; discontinues labs, vitals q-shift, non-comfort medications.

— Continues: opioids, antiemetics, anxiolytics, scopolamine for secretions, mouth care, repositioning.

— A Medicare benefit (and most private insurance) for patients with prognosis ≤6 months if disease runs its expected course, who elect to forgo curative therapy for the terminal diagnosis.

— Interdisciplinary team: MD, RN, social work, chaplain, aide, bereavement.

— Can be delivered at home, in SNF, or inpatient hospice unit.

— Patient may revoke at any time and return to standard care.

Not prognosis-dependent; appropriate alongside curative/disease-directed therapy at any stage of serious illness.

DNR (Do Not Resuscitate)
DNI (Do Not Intubate)
AND (Allow Natural Death)
Comfort Measures Only (CMO)
Hospice
Palliative care
Key distinction: Palliative care = symptom + goals support at any stage. Hospice = palliative care once curative intent is set aside and prognosis ≤6 months. Patients on chemotherapy can receive palliative care but generally not hospice (with exceptions for palliative chemo/radiation).
Step 3 management: A DNR patient who develops a treatable pneumonia gets full antibiotics and admission; DNR is not "do not treat."
Solid White Background
Initiating and Documenting a Code Status Conversation

— Private space, sit down, minimize interruptions (silence pager), invite family the patient wants present.

— Confirm who is in the room and their roles.

— Ask permission to discuss serious topics.

Setting; Perception ("What's your understanding of where things stand?"); Invitation ("How much detail would you like?"); Knowledge (deliver prognosis honestly, in plain language, no jargon — "die" and "death," not "pass away"); Emotion (NURSE: Name, Understand, Respect, Support, Explore); Strategy/Summary.

— Avoid menu-style ("Do you want CPR? Pressors? Dialysis?") — overwhelms and shifts burden.

— Use values → recommendation: "Based on what you've told me about wanting to be at home and not on machines, I recommend we focus on comfort and not attempt CPR or ICU care. How does that sound?"

— Active code status order in EHR (Full Code / DNR / DNR-DNI / CMO).

Note capturing: who was present, capacity assessment, patient's stated values, prognosis discussed, recommendation made, decision reached, plan to revisit.

— Update POLST if outpatient/transitions-of-care relevant.

— At every major clinical change, transfer (ED→floor→ICU→SNF), and at least at each admission.

— Code status does not auto-renew across admissions in many systems — verify on every admission.

Setting up the conversation
Structure (SPIKES adapted)
Making a recommendation
Documentation requirements
Re-addressing code status
CCS pearl: On the CCS case, after stabilizing a critically ill patient, order "Family meeting — goals of care" and "Palliative care consult" for advanced/metastatic disease — both score points and are realistic Step 3 management.
Board pearl: Never present CPR as if it's likely to "fix" the underlying disease. The honest framing: "If your heart stops, it will be because your body is shutting down from the cancer — and CPR cannot reverse that."
Solid White Background
Legal Framework — Federal and State Foundations

— Federal law requiring Medicare/Medicaid-participating hospitals, SNFs, home health, hospice, and HMOs to:

— Ask every adult at admission whether they have an advance directive

— Provide written information on the right to accept/refuse treatment and to execute an advance directive

— Document presence of advance directive in the chart

— Not discriminate based on presence/absence of one

— Does not require patients to have an advance directive — only that they be asked and informed.

Karen Ann Quinlan (1976): Right of surrogates to withdraw life-sustaining ventilation; established substituted judgment.

Nancy Cruzan (1990, SCOTUS): States may require clear and convincing evidence of an incompetent patient's wishes to withdraw life support; affirmed competent adults' constitutional right to refuse treatment, including nutrition/hydration.

Terri Schiavo (2005): Underscored value of explicit advance directives and designated proxies to prevent intra-family conflict.

Legally and ethically equivalent. Not starting a ventilator and stopping one already in use carry the same moral weight. Clinicians often feel them differently — a key teaching point.

— Legally considered a medical treatment, not basic care, in the US; can be refused or withdrawn like any other intervention.

— Legal in select US states (e.g., OR, WA, CA, CO, VT, NJ, NM, ME, HI, NY for limited contexts — varies); requires capacitated adult, terminal illness with ≤6-month prognosis, multiple requests, waiting period, self-administration.

Distinct from euthanasia (clinician administers), which is illegal throughout the US.

Patient Self-Determination Act (PSDA, 1990)
Landmark cases (frequently tested concepts, not dates)
Withholding vs withdrawing
Artificial nutrition/hydration
Physician aid in dying (PAD/medical aid in dying)
Key distinction: Withdrawing a ventilator from a dying patient at the patient's/surrogate's request = allowing natural death, legal and ethical. Administering a lethal drug = euthanasia, illegal in the US.
Board pearl: A valid out-of-hospital DNR or POLST is the only document that reliably binds EMS — a living will alone is insufficient in the field.
Solid White Background
Managing Conflict — Patient, Family, and Team

— A capacitated patient's wishes prevail over family objections — full stop. Document capacity carefully.

— Engage family with empathy: their grief is real even if not decisional.

— Identify the legally appropriate surrogate (DPOA-HC > statutory hierarchy).

— When co-equal surrogates (e.g., multiple adult children) disagree: facilitate family meeting, social work, chaplain, ethics consult.

— Restate the substituted judgment standard: "We're not asking what you want — we're asking what she would want."

— Explore meaning. Often = "don't abandon us," "we're not ready," religious obligation, mistrust.

— Time-limited trials: "Let's try the ventilator for 72 hours. If she's not improving, we'll meet again and reassess." Concrete, measurable, with a decision point.

— Clinicians are not obligated to provide treatments that cannot achieve a physiologic goal (e.g., CPR in refractory multiorgan failure).

— Multi-step process: second opinion → ethics consult → palliative care → transfer offer → unilateral DNR only after institutional process followed.

— Nurse or trainee feels current plan prolongs suffering: validate, escalate via ethics consult, palliative care.

— Conscientious objection: a clinician may decline to personally participate in a legal intervention they find morally objectionable, but must not abandon the patient — arrange transfer of care.

— Available 24/7 at most institutions. Free, voluntary, advisory (not binding).

— Appropriate when: surrogate disputes, capacity unclear, futility concerns, moral distress, suspected coercion.

Patient vs family conflict
Family disagreement among surrogates
"Do everything" demands
Medically inappropriate ("futile") requests
Within-team conflict / moral distress
Ethics consultation
Step 3 management: When a wife insists on full code for her end-stage husband with capacity who wants comfort care — your duty is to the patient. Reaffirm his choice privately, then mediate the conversation with him present.
Solid White Background
Special Populations — Elderly, Dementia, and Frailty

— Mild dementia does not automatically eliminate capacity. Assess decision-specifically.

— Simplify language, use teach-back, allow time, involve family for support (not for the decision unless patient lacks capacity).

— Reassess capacity over multiple visits when feasible — fluctuating in delirium, sundowning.

Window of opportunity: do it early, while patient can articulate preferences and complete POLST/DPOA-HC.

— Document trigger points: "If I can no longer recognize my children…" or "If I require feeding tube placement…"

AGS and multiple society guidelines: PEG tubes do not improve survival, prevent aspiration, heal pressure ulcers, or improve quality of life in advanced dementia.

— Recommended approach: careful hand feeding, comfort-focused. Counseling families on this is a Step 3 favorite.

— Clinical Frailty Scale, gait speed (<0.6 m/s), unintended weight loss, recurrent hospitalizations, falls — all prognostic.

— In-hospital CPR survival to discharge in frail elderly with multimorbidity: often <5%.

— POLST should accompany every transfer. Reconcile on arrival.

— Many states require POLST review at SNF admission and annually.

Cognitive impairment and capacity
Advance care planning in early dementia
Feeding tubes in advanced dementia
Frailty and prognosis
SNF/LTC transitions
CCS pearl: For a nursing home patient admitted with aspiration pneumonia and advanced dementia, the high-value orders include: treat pneumonia, swallow eval, palliative care consult, family meeting, review/update POLSTnot automatic PEG placement.
Board pearl: "Would a PEG tube help her live longer or more comfortably?" In advanced dementia, the honest answer is no — hand feeding is the standard. Tested repeatedly.
Solid White Background
Special Populations — Pediatrics, Pregnancy, and Specific Contexts

— Minors generally cannot consent or refuse, but assent (developmentally appropriate agreement) should be sought from school-age children and adolescents.

Parents are surrogates using best-interest standard.

Mature minor doctrine (state-dependent): some adolescents may consent to specific care (STI, contraception, mental health, substance use) without parental involvement.

Emancipated minors: married, military, court-declared, sometimes pregnant/parenting — full decisional rights.

— Parental refusal of life-saving treatment (e.g., transfusion in a child with leukemia): override via court order; physician obligation is to the child.

— Several states have "pregnancy exclusion" clauses in advance directive statutes that may invalidate a DNR/withdrawal request during pregnancy — controversial, evolving.

— A capacitated pregnant patient retains the right to refuse treatment for herself; conflicts with fetal interests are ethically and legally complex — involve ethics and legal early.

— Default automatic suspension of DNR for surgery is outdated and inappropriate.

Required reconsideration is the standard (ASA, ACS): the surgeon/anesthesiologist must discuss with the patient whether to:

— Suspend DNR fully for OR

— Maintain DNR

— Use goal-directed approach (resuscitate only reversible, anesthesia-induced events)

— Document the agreed-upon plan; resume original DNR at a defined postop time point.

— Discuss only after death is declared/imminent and code status is settled. Typically initiated by organ procurement organization (OPO), not the treating team — preserves trust and avoids conflict of interest.

Pediatrics
Pregnancy
Perioperative DNR
Organ donation
Key distinction: A DNR is not automatically suspended in the OR — required reconsideration with explicit, documented decision is the Step 3 answer.
Solid White Background
Complications of Poor or Absent Code Status Documentation

Unwanted CPR in dying patients: rib fractures, sternal fractures, aspiration, ICU stays, prolonged dying — all without meaningful survival benefit in metastatic/end-stage disease.

Undertreatment of DNR patients: misinterpretation of DNR as "do not treat" leads to omitted antibiotics, withheld pain control, exclusion from interventions that could relieve symptoms or reverse acute issues. This is a well-documented quality problem.

Delayed palliative care consultation correlates with more aggressive end-of-life care, higher cost, lower family satisfaction, and shorter survival in several malignancies (e.g., metastatic NSCLC — Temel trial).

— Code status not reconciled at admission → SNF resident receives unwanted CPR on arrival to ED.

— POLST lost in transfer; default-to-full-code applied.

— Code status documented in a note but not as an active order → bedside team performs CPR.

— Verbal-only DNR not co-signed → not legally binding in some jurisdictions.

— Complicated grief, PTSD in ICU family members (post-intensive care syndrome–family, PICS-F), particularly after witnessed CPR or contested decisions.

— Mistrust of the medical system when conversations are rushed, jargon-heavy, or delayed to the crisis moment.

— Liability is higher for unwanted treatment delivered against documented wishes than for withholding treatment per a valid order.

— Failure to honor a valid POLST can violate state law.

Clinical harms
System and process failures
Family/psychosocial harms
Legal harms
Step 3 management: Mandatory medication reconciliation gets equal billing — but code status reconciliation at every transition is equally important. On the CCS, ordering "Confirm and document code status" early in any seriously ill patient is rarely wrong.
Board pearl: The default in the absence of documentation is full code — making timely, accurate documentation the single most important risk-mitigation step.
Solid White Background
When to Escalate — Ethics, Palliative Care, and Legal Consults

— Indications: serious illness with symptom burden, complex goals-of-care needs, family conflict, prognostic uncertainty, prolonged ICU stay, repeated admissions, considering hospice.

Early integration improves quality of life, reduces aggressive end-of-life care, and in some cancers extends survival.

— Prognosis ≤6 months if disease runs expected course, patient/surrogate agrees to forgo curative therapy for the terminal diagnosis.

— Triggers: hospice-eligible diagnoses (advanced cancer, ESRD off dialysis, NYHA IV HF on max therapy, GOLD D COPD with recurrent admissions, advanced dementia FAST stage 7, ALS).

— Don't wait for "days left" — median hospice stay in the US is ~17 days; ≥30% enroll in last week of life, missing benefit.

— Surrogate disputes, suspected coercion, capacity ambiguity, conscientious objection conflicts, requests for non-beneficial treatment, withdrawing life-sustaining therapy when team is divided.

— Court orders sought for: pediatric life-saving treatment refused by parents on non-religious or religious grounds where best-interest standard supports treatment; guardianship petitions for incapacitated patients without surrogates ("unbefriended patient").

— Spiritual distress, cultural needs, family system support, post-acute placement, advance directive completion at bedside.

— Many institutions require a second attending's concurrence to declare a treatment "medically inappropriate" and write a unilateral DNR — know your local policy.

Palliative care consult — call early
Hospice referral
Ethics consultation
Risk management / hospital legal
Social work and chaplaincy
Two-physician concurrence
CCS pearl: Realistic, scoreable orders in a goals-of-care CCS case: palliative care consult, social work consult, chaplaincy consult, family meeting, ethics consult (if conflict), hospice referral (if eligible). They cost time but are appropriate management.
Key distinction: Ethics consults are advisory, not binding; court orders are binding but slow — try clinical/ethical pathways first.
Solid White Background
Closely Related Concepts — Advance Directives, Living Wills, DPOA-HC
Advance directive (umbrella term)
— A written legal document expressing future healthcare preferences if the patient loses capacity.
— Two main components: living will and DPOA-HC.
Living will
— Specifies which treatments the patient would accept or refuse in defined scenarios (e.g., persistent vegetative state, terminal illness).
— Limitations: hypothetical, may not match actual clinical scenario, requires interpretation, not a medical order — does not directly bind EMS or floor teams.
Durable Power of Attorney for Healthcare (DPOA-HC) / healthcare proxy
— Designates a specific individual to make healthcare decisions when patient lacks capacity.
— Generally preferred over living will alone — a human can adapt to unanticipated clinical scenarios; a document cannot.
— "Durable" = remains effective despite the principal's incapacity.
Five Wishes
— A widely used, legally valid (in most states) advance directive document combining DPOA-HC, living will preferences, and personal/spiritual wishes in lay language.
Comparison to POLST
Feature Advance Directive POLST/MOLST
Form Legal document Medical order
For whom All adults Seriously ill / frail
Who signs Patient (± witness/notary) Patient AND clinician
Binds EMS Generally no Yes
Portability Limited Designed to travel
Scope Preferences for hypothetical future Orders for now
Key distinction: Every adult should have an advance directive. Only patients with serious illness should have a POLST. They are complementary, not interchangeable.
Board pearl: When both exist and conflict, the POLST (more recent, more specific medical order) generally takes precedence for the issues it addresses — but always reconcile with the patient/surrogate.
Solid White Background
Distinguishing from Other Ethical Frameworks

— Same elements: capacity, disclosure (diagnosis, proposed treatment, alternatives, risks/benefits, no-treatment option), voluntariness, understanding, consent/refusal.

— A capacitated patient can refuse any intervention — including CPR (DNR), intubation, transfusion (e.g., Jehovah's Witness adult), dialysis, ANH.

— Code status discussions may involve sensitive prognostic information; share with surrogates as appropriate, not necessarily extended family without permission.

Autonomy: patient's right to direct their care (DNR/POLST honors this).

Beneficence: acting in patient's best interest (recommending comfort care when appropriate).

Non-maleficence: avoiding harm (unwanted CPR is harm).

Justice: equitable access to advance care planning — minorities, low-SES, non-English-speakers are systematically less likely to have ACP. Address proactively.

— Administering opioids/sedatives to relieve suffering in a dying patient, even if it may secondarily hasten death, is ethical and legal when:

— Intent is symptom relief, not death

— Action itself is morally neutral or good

— Bad effect is not the means to the good effect

— Proportionality between benefit and risk

Distinct from euthanasia — intent and proportionality differ.

— Use of sedation to relieve refractory symptoms at end of life; ethically accepted under double-effect reasoning when other measures have failed.

Informed consent vs informed refusal
Confidentiality and disclosure exceptions
Principlism (Beauchamp & Childress) applied
Doctrine of double effect
Palliative sedation
Key distinction: Doctrine of double effect (treat suffering, accept possible hastening of death) ≠ physician aid in dying (intent is death) ≠ euthanasia (clinician administers lethal agent). Step 3 routinely tests this triad.
Step 3 management: A dying cancer patient with severe dyspnea on hospice — uptitrate morphine to comfort even if respiratory rate falls. Withholding opioids out of fear of "hastening death" is undertreatment.
Solid White Background
Transitions of Care and Longitudinal Plan

— Ensure POLST/MOLST is completed, signed by patient/surrogate AND clinician, and physically accompanies the patient.

— Document in discharge summary: code status, surrogate name and contact, DPOA-HC status, hospice/palliative enrollment.

— Communicate directly with receiving clinician (SNF medical director, PCP, hospice MD) — warm handoff reduces errors.

— Revisit goals at annual wellness visits (Medicare reimburses Advance Care Planning, CPT 99497/99498).

— Update with each major clinical change: new cancer diagnosis, hospitalization, functional decline.

— Confirm hospice election, primary diagnosis, level of care (routine home, continuous home, inpatient respite, general inpatient).

— Medications: discontinue non-symptom-directed drugs (statins, bisphosphonates, tight glycemic control, most anticoagulants depending on goals).

— Continue: opioids, antiemetics, anxiolytics, bowel regimen, mouth care.

— Address caregiver burden — refer to social work, respite resources, support groups.

— Anticipatory grief counseling, bereavement services (covered by Medicare hospice benefit up to 13 months post-death).

— Advance care planning documentation is a CMS quality measure.

— High-quality end-of-life care metrics: <10% receiving chemo in last 14 days of life, hospice enrollment >3 days before death, no ICU admission in last 30 days for terminal patients.

Discharge planning when code status is set
Outpatient longitudinal care
Hospice-specific transitions
Caregiver support
Quality metrics and value-based care
Step 3 management: After hospital discharge of a hospice-enrolled patient, follow-up call within 24–48 hours by hospice nurse is standard; PCP follow-up arranged per goals (often phone-based, home-based, or deferred to hospice team).
Board pearl: Code status is not a one-time conversation — it's a longitudinal process revisited at every inflection point.
Solid White Background
Follow-Up, Monitoring, and Quality Improvement

— Patient-level: revisit at admissions, ICU transfers, new metastases, hospice enrollment, change in functional status, new surrogate.

— Practice-level: maintain registries of seriously ill patients flagged for ACP; use EHR best-practice alerts.

— VitalTalk, Ariadne Labs Serious Illness Conversation Guide, Respecting Choices — evidence-based curricula proven to improve clinician communication.

— Communication is a trainable skill, not a personality trait — Step 3 endorses ongoing CME.

— Goal concordance (did care delivered match expressed wishes?), family satisfaction (FS-ICU), quality of dying and death (QODD) — used in QI.

— Black, Hispanic, and Asian-American patients are less likely to complete ACP/POLST, more likely to receive aggressive end-of-life care, less likely to enroll in hospice.

— Drivers: historical mistrust, communication barriers, religious/cultural values, clinician bias, access.

Mitigation: culturally tailored conversations, language-concordant care or trained medical interpreters (not family), community partnerships.

— Code status order sets, banner displays of POLST/DNR, automatic re-verification prompts at transfer.

— Adverse event review: any CPR performed against documented wishes is a sentinel event requiring root cause analysis.

— Medicare covers ACP discussions (CPT 99497 first 30 min, 99498 each additional 30 min) — separately billable, even without face-to-face problem-oriented visit.

— Patients owe no copay when ACP is part of the annual wellness visit.

Tracking and revisiting
Counseling skills development
Patient-/family-reported outcomes
Health disparities
EHR and system tools
Reimbursement
Step 3 management: During an AWV with a 78-year-old with multiple comorbidities, bill 99497 for the 25-minute advance care planning discussion documented in the note — appropriate, reimbursed, and quality-rewarded.
Board pearl: A documented ACP discussion in the chart is the single best protection against both unwanted care and litigation.
Solid White Background
Ethical, Legal, and Patient Safety Considerations

— A capacitated adult may refuse life-sustaining treatment for any reason or no reason — religious, idiosyncratic, or unexplained. The physician's role is to ensure the decision is informed and voluntary, not to agree with it.

— Even an "unwise" refusal does not negate capacity if the four elements are intact.

— Sudden POLST change at insistence of one family member with financial interest.

— Patient deferring all answers to a relative who interrupts or speaks over them.

— Inconsistent stated preferences across visits.

Action: interview patient alone, involve social work, consider elder abuse screening and mandatory reporting if suspicion of exploitation. Elder abuse reporting is mandatory in nearly all US states for healthcare providers.

— Patient transferred from SNF to ED without POLST → resuscitated against wishes.

— Code status not re-entered as an active order on transfer from ICU to floor.

Mitigation: mandatory code status order on every admission/transfer; structured handoff (I-PASS) including code status.

— A clinician who declines, on personal moral grounds, to participate in withdrawing a ventilator must:

— Inform the team

— Not impose personal beliefs on the patient

— Ensure timely transfer of care to a willing colleague — non-abandonment is non-negotiable.

— Suspected elder abuse, dependent adult abuse, or coercion uncovered during a goals-of-care discussion → report to Adult Protective Services per state law, even if the patient asks you not to.

— Verbal DNR orders should be co-signed within institutional time limits.

— Conflicting POLST sections must be reconciled before honoring — when in doubt, default to treatment and clarify urgently.

Autonomy as the anchor
Coercion red flags
Transition-of-care risks (Step 3 favorite)
Conscientious objection
Mandatory reporting overlap
Documentation as patient safety
Step 3 management: A SNF patient with valid POLST marked "Comfort Measures Only" is brought to the ED by an EMT who performed CPR despite the form being in the chart. Your role: stabilize per POLST (i.e., stop unwanted resuscitation if patient is now stable, redirect to comfort), notify family, file an incident report, and arrange RCA/QI review. Honor the valid order going forward.
Solid White Background
High-Yield Associations and Rapid-Fire Facts

— In-hospital arrest, overall survival to discharge: ~17–25%

— Out-of-hospital arrest, survival to discharge: ~10%

— Metastatic cancer, in-hospital CPR survival to discharge: ~0–7%

— Advanced dementia, post-CPR meaningful recovery: vanishingly low

— Public perception (per TV/media): 60–75% — correct this misconception

— Capacitated patient's current spoken wishes > valid POLST > DPOA-HC decisions > living will > statutory surrogate hierarchy > best-interest determination

— DNR, DNAR, AND (Allow Natural Death)

— DNI (Do Not Intubate)

— POLST/MOLST/MOST/POST (state variants)

— DPOA-HC (Durable Power of Attorney for Healthcare)

— PSDA (Patient Self-Determination Act, 1990)

— ANH (Artificial Nutrition and Hydration)

— CMO (Comfort Measures Only)

— Bright pink (CA), green (OR), lime/lavender (varies) — designed to be visually obvious in the chart and on the refrigerator at home.

"Would I be surprised if this patient died in the next 12 months?" — if no, initiate ACP/POLST conversation.

— Useful tool for families wanting "everything" — define endpoints (clinical, time-based) and decision points explicitly.

— Two physicians (attending + hospice MD) certify ≤6-month prognosis if disease runs expected course; patient elects to forgo curative therapy for terminal diagnosis.

— Legally and ethically equivalent — repeatedly tested.

— Does NOT prolong life, prevent aspiration, or improve quality of life. Hand feeding preferred.

CPR survival realities (counsel patients with these numbers)
Document hierarchy (quick reference)
Key acronyms
Color of POLST forms
"Surprise question"
Time-limited trials
Hospice eligibility (Medicare)
Withholding = Withdrawing
PEG tube in advanced dementia
Board pearl: When the stem mentions a capacitated patient refusing CPR despite family objection, the answer is virtually always: honor the patient's wishes, document, and support the family emotionally.
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Board Question Stem Patterns

— 72M with metastatic cancer, alert, oriented, says he wants DNR; daughter insists "do everything." Answer: honor patient's wishes, write DNR order, support daughter.

— SNF resident with valid signed POLST (DNR, Comfort Only) and an older living will requesting "all measures." Answer: POLST controls; it is the active medical order.

— Mild dementia patient refuses dialysis after thorough discussion, articulates values, demonstrates understanding. Answer: has capacity, honor refusal; do not override based on diagnosis alone.

— DNR patient scheduled for hip ORIF after fall. Answer: required reconsideration — discuss with patient/surrogate; do not automatically suspend.

— Family of advanced dementia patient with recurrent aspiration asks about PEG. Answer: counsel that PEG does not improve outcomes; recommend careful hand feeding, palliative care consult.

— Dying patient on hospice with severe dyspnea; nurse worried morphine might "hasten death." Answer: uptitrate morphine for symptom relief; intent is comfort, ethically appropriate.

— Incapacitated patient, no advance directive; estranged spouse vs devoted adult daughter disagree. Answer: spouse is the default surrogate (unless DPOA-HC designates otherwise or jurisdiction differs); engage ethics if conflict persists.

— Parents refuse life-saving transfusion for child on religious grounds. Answer: seek emergent court order; treat to save life. (Adult Jehovah's Witness with capacity: honor refusal.)

— DNR patient with pneumonia and sepsis. Answer: full antibiotics, IV fluids, admission, even ICU if goals align; DNR only affects response to cardiopulmonary arrest.

— EMS resuscitates SNF patient despite valid POLST (Comfort Only). Answer: redirect to comfort care, family meeting, incident report, QI review.

Pattern 1 — Family vs capacitated patient
Pattern 2 — POLST vs living will
Pattern 3 — Capacity in dementia
Pattern 4 — Perioperative DNR
Pattern 5 — PEG in advanced dementia
Pattern 6 — Doctrine of double effect
Pattern 7 — Surrogate hierarchy
Pattern 8 — Pediatric refusal
Pattern 9 — DNR ≠ Do Not Treat
Pattern 10 — Unwanted CPR
Board pearl: When in doubt, the answer is rarely "do CPR anyway" — it's almost always honor the documented or stated wishes after confirming validity and capacity.
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One-Line Recap

A DNR order limits only CPR at cardiopulmonary arrest; a POLST/MOLST is a portable, signed medical order that translates a seriously ill patient's goals into actionable instructions across all care settings — and both must be grounded in a capacity-informed, values-first conversation that is documented, revisited, and respected.

Hierarchy: Capacitated patient's spoken wishes > valid POLST > DPOA-HC > living will > statutory surrogate > best interest.
Capacity is clinical, decision-specific, and time-specific — not synonymous with competence and not negated by a psychiatric or dementia diagnosis alone. The 4 elements: communicate, understand, appreciate, reason.
DNR is not "do not treat." Patients with DNR orders receive antibiotics, fluids, surgery, ICU care, and intubation for non-arrest indications unless separately limited. Withholding and withdrawing are ethically and legally equivalent.
POLST is for the seriously ill (surprise question = no); advance directives are for all adults. They are complementary. Reconcile code status at every admission and transition — unreconciled code status is a sentinel-event risk and a Step 3 management trap.
Counsel honestly: real in-hospital CPR survival to discharge is ~17% overall and approaches zero in metastatic cancer and advanced dementia — and PEG tubes do not help advanced dementia patients live longer or better. Hand feeding and early palliative/hospice referral are the evidence-based answers.
Step 3 management default: capacitated patient's wishes prevail, document the conversation, involve palliative care early, use time-limited trials when family is unready, and call ethics when conflict persists.
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